Welcome to our community

PBCers Organization

The Voice of PBC Patients Since 1996

Call: 585-285-7136

Email: pbcers@pbcers.org

Upcoming Events

September 19, 2026 Cross Border Lunch

Niagara Falls NY

Register for this free lunch.


November 21, 2026 Lunch & Learn

Seattle WA / Details to come


November 21, 2026 Lunch & Learn

San Francisco CA / Details to come


Boston MA Lunch, TBDD

Details to come


Houston TX Lunch & Learn, TBD

Details to come

Connect

Connect with others affected by PBC, find knowledgeable health care providers, and support ongoing PBC research to find a cure. Connect with others.

We welcome volunteers

Sign up and let us know how you’d like to help the PBCers. Sign up to volunteer.

Facebook Updates

The Voice of PBC Survey

In recognition of PBC Awareness Month, discover what patient living with PBC want the world to know.

Learn more
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Support the PBCers

What is PBC?

Primary Biliary Cholangitis, also known as PBC, is a chronic liver disease that slowly destroys the intrahepatic bile ducts within the liver. Learn more >>

Patient Registry

Are you living with PBC? Our Patient Registry lets you share information about your PBC status with researchers and learn about clinical trials. Learn more >>

Clinical Trials

Are you a match? A PBC clinical trial may be looking for someone just like you. Try Antidote Match and find out. Learn More >>

Read Our Latest News

PBCers Organization Videos

John Vierling , MD - Diagnosis and Treatment of PBC 2024 PBCers Conference
Mark Swain, MD - Fatigue in PBC - Who, How, Why and What to Do?
Marlyn Mayo, MD - Managing PBC Itch - Let's Start From Scratch

PBC Stories

















2025 Conference

Save the date! Our 2025 PBCers Conference will be announced soon.

Research update

Latest PBC Research

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Clinical Trials

Are you a match?

A PBC clinical trial may be looking for someone just like you.
Try Antidote Match

Patient Registry

Are you living with PBC?

 

Our Patient Registry lets you share information about your PBC status with researchers and learn about clinical trials.

 

Video library
PBCer Stories

What’s your experience with PBC?

Tell us! Every PBC journey is a bit different. Share your story with fellow PBCers and learn from other members of our community..

25 November

Story 1

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12 June

Story 2

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22 June

Story 3

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testimonials

What People Think About Us

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