Please Read Our Rules

PBC Daily Digest Posting Rules The PBC Daily Digest is a moderated group.  All e-mails sent to our group address (PBC_Digest@yahoogroups.com) must be approved by one of our moderators. Size of e-mails:  E-mails posted to the group must be less than 400 words. If your e-mail is more than 400 words, please split it into two e-mails.  E-mails over the word limit will be rejected. Mailing format: We ask our members to receive the PBC Daily Digest in Yahoo digest format. This is the format we have used for the past 11 years, and all new members are changed to digest format. If you receive individual e-mails, please do not reply to postings until they have been sent out to all members in the digest. Replies to the group: If you are answering numerous postings, please combine replies in one or two e-mails instead of sending numerous individual e-mails. Be kind & gentle: We already have enough problems trying to cope with the diagnosis and daily living of PBC. We don't need bickering in the digest adding additional stress. We are here to offer caring help and support to one another. Private e-mails to other members: If you do not agree with a posting in the digest, please do NOT reply to their personal e-mail address unless they request private e-mails. If your reply can't be posted to the group, then it most likely should NOT be sent at all. Sending an argumentative or tacky e-mail to a member's private e-mail address is grounds for removal from our group. Upper case text:  Please do NOT type your e-mails in all upper case text.  ALL CAPS is considered shouting in cyberspace language and is hard on the readers eyes. Copyright and trademarked material CANNOT be posted in the digest, chatroom, message board, extension mailing lists or newsletter.  If a member finds an interesting "PBC related" article, they can post the link, title and few sentences of the article. Members can use the link posted to read the complete article.  Please send in PBC related links only. We do not discuss politics or religion.  We are a diverse group consisting of members around the world. Our organization is here to offer help and support for PBC, associated diseases, day-to-day living, treatments, research, insurance, fundraising and other PBC related topics.   We offer extension groups for political and spiritual discussions. We do not discuss race or sexual preferences. No slamming of other members. No advertising or group member mailing without the PBCers Executive Committee's approval.  We ask members not to collect e-mail addresses from the PBC daily digest and use this information to send out spam mail.  Group mailings to our members without prior approval is considered spamming, and the person will be removed from the PBCers group immediately.  We all receive enough e-mail in our mailboxes, and don't need our digest  members adding to the problem.  No vulgarity or offensive language. Moderators have the option "not  to approve" an e-mail they consider in violation with any of the above posting rules. Moderators can "remove a member" they feel is disruptive to our group. Please sign your e-mails.  You do not have to use your last name, but it is helpful to give your first name. Some members also include their state/country, disease stage and diagnosis year. Example:  Jane, La, Stage 1, Dx 2004 (For safety reasons, please no cities or phone numbers.) The PBC Daily Digest offers help and support to all PBC patients, family members, friends and others wanting to learn more about PBC. By joining the PBC Daily Digest, you agree to our posting rules. Thank you PBC Daily Digest Moderators

Organization Guidelines

• The PBCers Organization offers various "established" areas of support and help for our members.  Please do not start a new PBCers "group" chatroom, message board, listbot or website that you wish to be associated with the PBCers Organization without prior Executive Committee approval.  
• Any requests to link your webpage to our website should be sent to PBCers96@yahoo.com.
• If you would like to add your personal homepage site, member bio, picture, PBCers group member picture, had a newspaper article published or have an interesting url to add to our website, please send the information to PBCers96@yahoo.com and mark "For PBCers Website" in the subject heading.
• Any type of "PBCers Organization" research project or survey must be approved by the Executive Committee before being submitted to the digest members.
• The Executive Committee has the right to remove an area of support from our organization's sponsorship.

Fundraising Guidelines

We welcome fundraising projects and appreciate the efforts made by so many PBCers, but we ask our subscribers to follow the PBCers Organization rules for fundraising projects.

• All fundraising projects listed on the PBCers website must be approved by the PBCers Organization.

• All fundraising projects posted in the PBC daily digest  more than ONCE must be approved by the PBCers Organization.

• The PBC daily digest CAN NOT be used as a means for our members to place orders. If we allow this, there won't be any room for support & help postings.  PBC Awareness products sold or approved by the PBCers Organization are listed on our website under Merchandise.

• The name PBCers is trademarked. Please do not use the name PBCers WITHOUT WRITTEN approval by the PBCers Organization.