Marlene R Living with PBC
I was diagosed 21 yrs. ago and given 8 yrs. to live. At that time it
was considered a fatal liver disease no known cure. I went to the
library and found the best hepatolgist listed in my Area and have been
with him ever since. After about 10 years I was put on Actigall in a
study trial. Then 4 years ago methotrexate was added once a week. I also
have rheumatoid arthritis, so I have been seeing 2 doctors every 3 months for
over 21 yrs. I have blood work every 3 months, a liver biopsy every 2 years
and endoscopy. pft, ultra sound, chest x-ray, 24 hr. urine collection. I
call this my major tuneup. I am doing wonderful and have no varices or itching.
I did write to the doctor who gave me 8 years to live and told him I was still here
and not to do predictions in the future.
Take care
Live, Laugh, Love.....