PBCers Site Map

About our PBCers Organization

• Articles of Association
• Bylaws
• Committees & Moderators
• Disclaimer
• Facts about our organization
• How the PBCers began
• Mission Statement
• Nonprofit status  IRS Determination Letter
• Rules for our digest postings and group

Areas of Support & Education for our members

• Chatrooms
  • All moderated chatroom Policy & Procedure Requirements
• Daily Digest for PBCers  
• Doctors Panel
• Doctors Referral Database
• Extension Listbots
  • PBCersMisc Listbot
  • Family & Friends Listbot
  • Spiritual Side of PBC Listbot
• Message Board
• Newsletter "PBCers Meeting the Challenge"
• Organ Donor Awareness
  • Organ Donor Card
  • Tips for ODA
• PBC: Fund for the Cure
  • Annual PBC Conferences
  • American Liver Foundation
  • California Fun Walk
  • Fundraiser update
  • iGive.com
  • Individual Fundraising
  • Pledgeform
  • PBC Fund the Cure:  We need your help
  • Speaking to groups for education & fundraising
• PBCers Quilts
  • How to add your quilt block
  • Jim Nabors signs a PBCers quilt block
  • Quilt presentation by Jean Haynes
  • Showing our PBCers quilts
• PBCers Regional Groups
• PBC Research surveys & projects
  • PBCers Surveys
    • Survey 1996
    • Survey 1997
    • Survey 1997
  • University of California Davis
    • M. Eric Gershwin
    • Research update  May 20, 1999
    • Research update  October 8, 1999

Article:

• What is Primary Biliary Cirrhosis?
  • Also called "Chronic Nonsuppurative Destructive Cholangitis" and "Primary Autoimmune Cholangitis"
  • Arthritic aches and pains in bones
  • Autoimmune diseases
  • Diagnostic tests
  • Diet & Nutrition
  • Diseases associated with PBC
  • Hepatic Encephalopathy
  • Itching
  • Lab tests
  • Liver area pain  
  • Liver biopsy
  • Low fat-low sodium diet
  • Mayo Natural History Model for PBC - Survival probability of a patient with primary biliary cirrhosis without treatment.
  • Osteoporosis exercises. 
  • Osteoporosis or other metabolic bone disease.
  • PBC Disease stages
  • PBC Menus by Norma Thiel
  • Questions you may want to ask your doctor.
  • Thyroid problems
  • Transplant
  • Transplant outcome for PBC
• Medication treatment for PBC
  • Actigall
  • URSO
  • URSO250  
  • URSO250 dosage & cost chat
• Other PBC Links of Interest
• Hepatology  terms all PBCers should know
• Liver, it's function & diseases

Articles of Interest

Conferences:

• Conference 1999 Invading Las Vegas
  • Dr. Marilyn Blau Klainberg presentation notes 1999 conference
  • Dr. Emil Miskovsky presentation notes 1999 conference
• Conference 2000 Facing the Challenge
  • Conference 2000 Exhibitors
  • Conference 2000 Guest Speakers
  • Conference 2000 guest speaker cassette tapes order form & list
• Conference 2001
• Conference 2002
• Conference 2003

Drug information on Generic & Namebrand

Feelings I keep to myself poem

Friends poem

GI & Other Liver Disease Links

Healthy Living

Hepsites links

Itching - answers from our Doctors Panel

Join the PBCers

Just for women links

Medication Assistance

Meet some of the PBCers

• PBCers Bios & some member pictures
• PBCers In The News
• In Loving Memory of our PBCers who no longer fight PBC  
• A Sister's Story  by Caroline Marks
• A PBCers Poem  by Judy Pittman

Our Sponsor

• Axcan Pharma, Inc. marketers of URSO250

Our Partner in fighting PBC

• American Liver Foundation

Other Medical Links

Other PBC support groups

Other support groups and organizations

Personal websites

Pictures:

• Pictures:  Actor/Singer Jim Nabors signs the PBCers Quilt Block
• Pictures:  Ashville, NC PBCers Meeting
• Pictures:  California Fun walk
• Pictures:  Conference 1999
• Pictures:  Conference 2000-1
• Pictures:  Group events
• Pictures:  Meet some of our members
• Pictures:  Northeast US PBCers Meeting
• Pictures:  PBCers receives award from ALF

Quick & Easy Recipes by our PBCers

Social Security Disability

• Medicaid
• Medicare QMB program
• Residual Functional Capacity Questionnaire for SS
• Things to know before you file for Social Security Disability

Transplant Links

Transplant Answers and Misconceptions

UK PBC Foundation Conference Notes