Primary Biliary Cirrhosis

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Primary Biliary Cirrhosis Education & Research Campaign

 

To help in our PBC education campaign, it is important for each of us to educate our family and friends. This can be difficult because family members do not want to hear their loved one has been diagnosed with a chronic illness such as PBC. But they need to be educated and we need their help in the fight against PBC.

 

Give family members and friends a copy of our “PBC Education Flyer” and ask them to read it. By reading the correct information they will be able to understand PBC, and not be frightened by the unknown. They will understand PBC is not alcohol or drug related or contagious.

 

Since PBC is considered a rare disease, there isn't much interest in research. As a group, we need to get more doctors interested in PBC research, making funds available for new research.

 

Our group started as one, then two, then three and we have grown to almost 3,000 members worldwide. We have accomplished more in the past 10 years than we ever dreamed possible. Imagine what we can accomplish if we get our family and friends involved in the fight against PBC. 

 

The goals of the PBCers education and research campaign:

Educate PBC patients, family members and friends.

 

Help make the medical community aware of the PBCers Organization and how as a group, we offer help and support to PBC patients.

 

Overcome some of the "myths" about liver diseases in the general public.  By overcoming these myths and educating the general public, it will help our fundraising efforts for the PBC Fund the Cure.

 

PBC is considered a rare disease, so there isn’t much interest in PBC research.  As a group, we need to get more doctors interested in PBC research, making funds available for new research.

 

Ways you can help:

                        

Wear PBCers Logo shirts, hats or carry a PBCers tote. Logo items are a great way to start conversations about PBC. Sold at our PBCers store.

 

Wear your PBC Awareness Lapel Pin and Bracelet.

 

Pass out PBCers Organization Axcan Pharma brochures in your area. You can request packs of brochures from Axcan to display at doctor's offices and other medical facilities in your area. ( Please include your name, address, city, state, zip code when requesting packs of PBCers brochures. ) You can also print brochures from your computer.

 

Include mini PBC info cards in your letters and cards. (Printable)

 

Post in online newsgroups and message boards about PBC

 

Organize local meetings in your area and invite PBCers, family members, neighbors and friends.

 

Talk to anyone and everyone about PBC....in grocery lines, at church, doctor’s office, clinics, buses, elevators.  Anywhere you have a chance to educate someone about PBC.

 

Discuss PBC with your family, friends and coworkers.  Ask them to help educate the general public.  Give them a copy of our PBC Education Flyer.

 

Educate the medical community. There are so many medical professionals who know very little about PBC and nothing about our organization.  Ask to place PBCers Organization Axcan Pharma brochures in doctors offices, clinics and hospitals.

 

Work with your area newspaper about having an article published about PBC.

 

Write to your government officials about the need for PBC research and funding.

 

Anything you can think of to help with PBC education and research.

 

 

Fundraising Guidelines

We welcome fundraising projects and appreciate the efforts, but we ask our subscribers to follow the PBCers Organization rules for fundraising projects.

 

All fundraising projects listed on the PBCers website must be approved by the PBCers Organization.

 

All fundraising projects posted in the PBC daily digest  more than ONCE must be approved by the PBCers Organization.

 

The PBC daily digest CAN NOT be used as a means for our members to place orders. If we allow this, there won't be any room for support & help postings.  

 

The name PBCers is trademarked. Please do not use the name PBCers WITHOUT WRITTEN approval by the PBCers Organization.