PBC Education & Research

Primary Biliary Cirrhosis Education & Research

The goals of the PBCers education and research campaign areto help:

Educate those diagnosed with PBC
Make the medical community aware of the PBCers organization and how we can help one another.
Overcome some of the myths about liver diseases in the general public. By overcoming these myths and educating the general public, it will help our fundraising efforts for the PBC Fund the Cure.
Since PBC is considered a rare disease, there isn’t much interest in PBC research. As a group, we need to get more doctors interested in PBC research, making funds available for new research.

To help in our PBC education campaign, it is important for each of us to educate our family and friends. This can be difficult because family members do not want to hear their loved one has been diagnosed with a chronic illness such as PBC. But they need to be educated and we need their help in the fight against PBC.

Give family members and friends a copy of “PBC Education Flyer” and ask them to read it. By reading the correct information they will be able to understand PBC, and not be frightened by the unknown. They will understand PBC is not alcohol or drug related, not contagious and believed to be an autoimmune disease.

We started as a group of 3, and have grown to almost 3,000 members worldwide and accomplished more in the past 10 years than we thought possible. Imagine what we can accomplish if we get our family and friends involved in the fight against PBC.

Ways you can help:

Wear PBCers logo shirts, hats or carry a PBCers tote. Logo items are a great way to start conversations about PBC.
Wear your PBC Awareness Lapel Pin.
Post in online newsgroups and message boards about PBC
Organize regional meetings in your area and invite PBCers, family members, neighbors and friends.
Talk to anyone and everyone about PBC....in grocery lines, at church, doctor’s office, clinics, buses, elevators. Anywhere you have a chance to educate someone about PBC.
Discuss PBC with your family, friends and coworkers. Ask them to help educate the general public.
Educate the medical community. There are so many medical professionals who know very little about PBC and nothing about our organization.
Work with your area newspaper about having an article published on PBC.
Pass out PBCers Organization Axcan Pharma flyers in your area.
Write to your government officials about PBC research and funding.
Anything you can think of to help with PBC education and research.